Sebastian's story starts on 15.08.2008 when he was prematurely born at 26 weeks.
He had only 1.000 gr. at birth and because of that the baby had multiple medical problems, and he had to stay in the incubator for two months and a half. In all this time the baby fought for his life – he had frequent attacks of apnea of prematurity, he had pulmonary dysplasia and hiatal hernia.
Our angel resisted in spite of all these medical complications.
When the child had one month and one week we received the first good news regarding the child’s health, wich seemed to be improving. Doctors had assured us that the baby’s eyes were well and this was a surprise even for them. Unfortunately this good news vanished in a second when doctors told us that our child had Retinopathy of Prematurity-stage V, a disease that caused total retinal detachment and finally blindness.
Sebastian had to be operated by emergency on both eyes, to avoid a tragic outcome for the child – blindness. Unfortunately the laser surgery failed, the bad luck was with Sebastian in the surgery room because the laser broke down and the child had the surgery only at one eye. Few days later the child had the second surgery at the other eye and it was very difficult for the baby to handle the two successive anesthesia.
Although after the surgery the doctor told us that everything would be fine, the situation changed dramatically when at the second eye exam the doctor told us that the surgery didn't succed.
The news was devastating for us (Sebastian's parents) but we continued to fight for our son's life, which was threatened by all sorts of medical complications. (In October 2010 the child had the first hernia surgery).
After two and a half months our baby had 2450 gr. and he was discharged from hospital.
We restart the eye exams on January 2009. The first medical check was made by the doctor who performed the eye surgerys. The doctor told us that the baby won't see at all. We were shocked and speechless when we heard doctor's words. However we continued to hope and we didn’t give up.
We went with the baby to a lot of eye pediatricians, some of them told us to wait until the child will have 3 years old but they couldn’t explain why, others told us that another eye surgery was a very high risk for the baby.
At the age of 2 years and 9 months we heard that in Cluj was a clinic with very good ophthalmologists. But this doctors couldn't do any miracle for our angel. In spite of all this we continue to hope.
opened we made an appointment for a medical check. Here Sebastian was seen by a doctor from Europe Eye Hospital who put us in touch with Dr. Huseyin Yetik – pediatric ophthalmologist. After we send by email Sebastian's medical records the doctor recommanded a surgery for the right eye of the child because the baby had glaucoma . Glaucoma causes the growth of the eye and there is a high risk for the child's eye to come out of the orbit and the child may lose his right eye for good. Regarding the left eye Dr. Huseyin Yetik didn't give us much hope - he told us to wait. Turkey
From this moment we started to contact many clinics abroad, we sent by email Sebastian’s medical records and asked for help.
We discussed with doctors from Asia and
, who told us that there was a chance for the left eye of the child to be saved . At this eye there is a partial retinal detachment and after the surgery there is a high chance for the child to see with the left eye. The surgery can't be delayed because the optic nerve atrophies and the chances for his vision are vanishing. This surgery can be done only in USA USA or Asia.
On September 19th 2011 we managed to get to
Italy, where Sebastian was eye examined by dr. Antonio Capone from . USA
After Sebastian was eye examined by dr. Antonio Capone we were very happy because now we have the confirmation that the surgery on the left eye can be performed in
and Sebastian's left eye may have a chance to see. USA
Unfortunately our fight didn’t end here because now we have a bigger problem, we don’t have the amount of money necessary for Sebastian’s surgery.
This is why we hope that people can understand our drama and maybe they can help us to raise the money for Sebastian’s surgery.
My name is Colgiu Liliana and I am the mother of Colgiu Sebastian a little boy of three years old from Romania . My son was diagnosed with RETINOPATHY OF PREMATURITY – a disease that causing retinal detachment and blindness, in the end.
At the age of one month the child was operated using laser diode surgery but unfortunately the surgery failed. Sebastian can't see anything right now , he only distinguishes the day by night.
With all these problems we continue to fight for our child and on September 19th 2011 we managed to get to Italy , where Sebastian was eye examined by dr. Antonio Capone from USA .
The doctor told us that at the right eye Sebastian has total retinal detachment and glaucoma and because of this he needs to have a surgery. Glaucoma causes the growth of the eye and there is a high risk for the child's eye to come out of the orbit and the child may lose his right eye for good.
Regarding the left eye the doctor was more confident. At this eye there is a partial retinal detachment and after the surgery there is a high chance for the child to see with the left eye. The surgery can't be delayed because the optic nerve atrophies and the chances for his vision are vanishing.
Unfortunately the surgery for the left eye can be done only in USA on William Beaumont Hospital from Detroit . This surgery is a hope for our son to have a normal childhood but the costs of this surgery are to much for our family to handle. The total costs for the surgery, transportation and accommodation for three weeks in USA are about 20.000 euro, an impossible price to pay for my family.
Because Sebastian needs permanent care i am the only person who take care of him that is why i don't have a job. My husband is supporting the all family and he is working as a civilian personnel in a military unit. We also have another son . He has 16 years old and we are looking to give him a propper education .Right now he is studing at Nicolae Balcescu Highschool from Voluntari. We are modest people with secondary education and the amount of 20.000 euro is over our possibility of payment.
By this email i kindly ask you to help Sebastian to have a chance of a normal life and to give him the possibility to play wiht the other children of his age.
Thank you very much and please excuse my language mistakes!
Bank Accounts opened in BRD Groupe Societe Generale – Colentina Branch
Titular of account: Colgiu Nedelcu (Sebastian’s father)
A close friend of Ionut Colgiu Family (for english language) +4 0726.405.771
Colgiu Liliana (mother - speaks only romanian) +4 0766.72.09.42
Colgiu Nedelcu (father - speaks only romanian) +4 0718.104.22.168